In addition to the treatment plans for chemo and the radiation plans I am working with a pain management team. This team helps me get the right mix of meds to fight the pain I am having which is always there and can get really bad at times. The majority of my pain is in my back and my left hip, which would make sense because I have a mass in both of those areas. I met with the pain team today and I think we have a good plan to begin with. It is really a trial and error type approach and we will keep tweaking the combination of meds until we find what is going to work best for me. As much as I hate taking pain meds I know they serve a purpose and if they are going to help me manage my pain so I can spend more time with my family and be as active as possible I am all for it.
For now I am focusing on every minute of every day and being in the moment. I have my Gamma Knife radiation treatment next Wednesday and I am looking forward to that being behind me. I don't know why I have so much stress about it, I just do. I have been decorating the house with my mom for Christmas and getting my Christmas shopping done. I am looking forward to my annual trip to the Nordstrom customer appreciation night this weekend to get some more Christmas shopping done with some of my favorite people. I had an amazing Thanksgiving with the biggest group we have ever had.... 47. It was absolutely perfect! Our kids had every cousin (except one) there and they all had so much fun. We had 3 turkeys and a whole ham and about 15 side dishes and it was all delicious. We also had our annual Ivy lunch and gift exchange. We are on year 11 and this is when me, my mom, my Auntie Kathy, my cousin Erin and Kristy get together for a yummy lunch and we exchange gifts. This year Lisa, Lauren, and Kristy's mom Jane were able to join us and we all had so much fun. I love this tradition and look forward to it every year. Not only do I always come home with an amazing gift but the food is so good and its fun to see if we can pick out and celebrities as well. Most of all it is just great to be with family and laugh, gossip, get caught up and be together.
This is still and forever will be the house of NO DOOM and GLOOM. I have been an upbeat, positive person my entire life and this does not change anything. like I said I am doing anything and everything to fight this to help prolong my time. If you want to come visit please do just call/text Peter to make sure I don't have an appointment when you want to come or that I already have people over, you know how everyone loves me so much LOL!!!!! The only rule I have is no tears, I understand that it is a difficult time but tears are something I am choosing not to spend time on and it is defiantly something my kids don't need to see. I love you all and hope to see your smiling faces soon.



God Bless you, Angel-Bug! I don't know what to say other than we love you and will support you in any way that you need. Bill & I and the kids miss all of you, and as I follow your journey in both my heart and my Mac, I regret that our children have not spent more time together, and that we are so wrapped up in our Oregon lives that we don't get down there as much as we should. That needs to change. I'm going to check in with your mom and with Peter and see if there is a time we can come visit that works well. The kids would love it, and so would I, and a sober Uncle Bill is a great guy to hang out with. :-) I check in with your mom, so I will let her lead me in any plans. You are truly one of the most inspirational, hard-headed, insightful mother bears on the planet. So proud to be family. <3
ReplyDeleteWell, per usual Dana I am not the sharpest of anything about posting on your blog! I have been writing things all along but today is the first time I was asked for an email or anything. So it comes up Patti/Mama? when in my life I did that I don't know, I have wanted you to know on these blogs how much I have appreciated them. To always let you know how much we love you, support and admire you.
ReplyDeleteYou are without a doubt one of the most amazing people I have had the pleasure of having in my life. As a little girl always beautiful and fun, full of life! Some things never change, here you are in one of the most difficult journeys a person could be on and you are an inspiration to others. Your strength and positive attitude are absolutely amazing. We love and admire you so much Dana and our prayers for you as you go forward with this fight for strength and comfort, that your Dr will find that perfect cocktail that will ease your pain and stop anything more from happening. I hope to see you today or tomorrow before I go back to AZ.
You are loved! I speak for our whole family XXXOOO
Patti/Mama AKA Schienle If I knew how to change that I would! lol